Rehabilitation Review, September 2005
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Rehabilitation Review
Volume 16, No. 5, September 2005 |
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Organizations for All: Indicators of the Inclusive Organization
by Monetta Bailey and Jill Wagar
Improving quality for life for persons with developmental disabilities is a goal of both community capacity and community inclusion initiatives. With the deinstitutionalization movement which started in the mid-1900s, the emphasis has increasingly been on ensuring that
participation in the community is meaningful and in turn improves the quality of life of persons with developmental disabilities. Progression in the movement from normalization to integration and finally inclusion can be seen through the active and meaningful participation of persons with developmental disabilities in community programs, organizations and institutions, as well as through the services that are available to them.
From normalization to inclusion
Organizational policies are crucial to the process of bridging the gap
between an inclusive society and providing the opportunity for persons
with disabilities to have meaningful participation in society, thus paving the way from normalization and integration to inclusion. The extent to which organizations are accommodating to persons of various abilities determines just how inclusive the society is overall (Renzaglia, A., Karvonen, M., Drasgow, E. & Stoxen, C.C., 2003).
Services for individuals with developmental disabilities have historically been based on available options rather than on programs created to meet the unique needs, desires, and situation of each individual. Originally, normalization focused on first defining what is
normal, as determined by society. The goal was then to assimilate the individual into the ideals of normal, rather than on changing programs,
organizations, and institutions to accommodate those with developmental disabilities (Jackson, 1999; Culham & Nind, 2003; Renzaglia et al., 2003).
Fuelled by the beliefs that underlie normalization, integration is defined as being physically present in locations that are frequented by the general public. Successful integration therefore can be measured by
the reduction of physical segregation. However, on its own, integration
is not a sufficient indicator of community capacity, as mere physical
presence fails to take into account quality of life issues (Northway,
1997; Cummins & Lau, 2003; Renzaglia et al., 2003). Following from normalization and integration, inclusion is defined as a
process of actively incorporating persons into a society. Successful
inclusion involves ensuring that environments in society are accessible
to persons of various abilities and providing them with adequate
opportunities for participation. This includes both the physical
presence of persons with developmental disabilities in programs,
institutions, and organizations, as well as having their involvement be
mutually meaningful, respectable, and satisfying to both the individual
and society (Renzaglia et al., 2003). Based on the premise that in order for society to be inclusive,
organizations should promote meaningful participation, the following
organizational-level indicators help identify inclusive organizations,
programs, and institutions.
Mission statement of inclusion
Organizations must first demonstrate their commitment to inclusion by
articulating it in their mission statement. Having a mission and
philosophy which reflect inclusive values and promote an inclusive
approach to program management is essential. For example, there should
be a statement that welcomes a variety of individuals, which
demonstrates a commitment to laws and polices which safeguard the
rights of persons with developmental disabilities (Miller, K., Frisoli,
A., Smythe, A. & Schleien, S., 2003; Wehman, 2003; Brown, 1997).
Staff training in inclusion
Second, there should be emphasis placed on ensuring that the staff are
well trained in areas pertinent to persons with developmental
disabilities. This includes knowledge of the various disabilities as
well as sensitivity training. Staff training should emphasize methods
to successfully include citizens into the community. It is therefore
important that training be continuous in order to keep staff familiar
with new ideas and techniques in inclusion (Miller et al., 2003; Brown,
1997).Program goals that emphasize inclusionProgram goals should also reflect a focus on inclusion. For example,
the availability of opportunities for participation, skill development,
and socialization should be stressed over competition and high-level
performance. This creates a positive and safe environment for the
involvement of persons with various abilities, as participation that is
evaluated based solely on competition undermines the contributions of
those who compete at lower levels. In addition, programs should be
flexible and allow for modification and partial participation in order
to accommodate those with different needs and allow them to participate
and compete at different levels. Another requirement is to have
adaptable equipment to cater to various needs, as well as flexible
rules and the use of innovative problem-solving techniques (Miller et
al., 2003; Brown, 1997; Jasman, T., Storey, K. & Certo, N., 2000).
Teaching techniques geared toward inclusion
The use of techniques which are geared toward inclusion is also
advocated. These techniques include using teaching and facilitation
strategies which accommodate persons with various levels of functioning. Examples may include cooperative learning, and
companionship training. These activities are more welcoming to a wider
variety of individuals and emphasize cooperation rather than
competition. Task analysis helps to ensure that the individual receives
the supports needed in the activity as well as to identify the skills
that are needed to perform (Miller et al., 2003).Inclusive programmingAge and ability-appropriate programming should be established which aim
at maximizing the contribution of persons with developmental
disabilities while not devaluing them. Activities should not only be in
line with the individual’s interest in order to increase their
contribution, but they should also provide opportunities for life-long
learning and personal challenges, where individuals can develop and
improve their skills. Allowing persons to take risk in their activities
can serve to increase self esteem (Miller et al., 2003).
Physical accessibility
Matters concerning accessibility include not only physical
accessibility but also factors such as accessible scheduling and
programming. This is especially true where persons with disabilities
rely on others to transport them. Ensuring that programs are offered at
various times should help accommodate caregivers’ schedules as well
(Miller et al., 2003; Wehman, 2003; Wolf-Branigin, M., LeRoy, B. &
Miller, J., 2001; Renzaglia et al., 2003).Renzaglia et al. (2003) use the term “universal design” to denote a
building or structure that accommodates the needs of a variety of
individuals. However, they argue that the term can be viewed more
broadly than an environmental consideration so as to include universally designed programs at schools, businesses and other types of organizations. Environmental considerations such as physical design signal an
organization that is inclusive. In addition, organizations must
consider whether persons are asked to adapt to existing models, both physical and programming models, or whether these models can
accommodate individuals with different needs. Also, the program
materials used should be selected with the intention of modification to
fit various purposes and needs, for example, making reading material
available in large print and/or plain language (Renzaglia et al.,
2003).Conclusion
The above highlights some indicators that can identify inclusive
organizations. While it is important that organizations communicate
acceptance of a diverse population, the emphasis is on ensuring that
organizations and programs are accessible, both physically and
otherwise, to individuals of various abilities. Only then can a
community claim to be inclusive of persons with developmental
disabilities.
Key points
- Based on the ideas of normalization and integration, inclusion
goes beyond mere physical presence to encompass meaningful
participation.
- In order for individuals to have the capacity to participate in
their society, organizations must provide opportunities for inclusion.
- Inclusive organizations reflect: a mission statement of
inclusion; staff training on inclusion; program goals that emphasize
inclusion; teaching techniques geared toward inclusion; inclusive
programming; and physical accessibility.
Implications for practice
- Inclusive organizations are a vital link between a society that
is inclusive and improving the community capacity and quality of life
of persons with developmental disabilities.
References
Culham, A. & Nind, M. (2003). Deconstructing normalization: Clearing the way for inclusion. Journal of Intellectual and Developmental Disability
28(1), 65-78.
Hvinden, B. (2004).Nordic disability policies in a changing Europe: Is there still a distinct Nordic model? Social Policy and Administration 38(2), 170-189
Lord, J. & Hutchison, P. (2003). Individualized support and funding: Building blocks for capacity building and inclusion. Disability and Society 18(1), 71-86.
Morris, J. (2004). Independent living and community care: A disempowering framework. Disability and Society 19(5): 427-442.
Persons with
Developmental Disabilities Alberta Provincial Board. Community Capacity Initiative. Retrieved May 15, 2005, from http://www.pdd.org/initiatives/cci/default.shtml.
Renzaglia, A., Karvonen, M., Drasgow, E. & Stoxen, C. (2003). Promoting a lifetime of inclusion. Focus on Autism and Other Developmental Disabilities
18(3), 140-149.
Schwartz, C. & Armony-Sivan, R. (2001). Students’ attitudes to the inclusion of people with disabilities in the community. Disability and Society 16(3), 403-413
Vash, C. (2001). Disability attitudes for all latitudes. Journal of Rehabilitation January/February/March, 38-42.
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